6 myths about PCOS and fertility

September 15, 2022 Queer Forty Staff 6 min read

Polycystic ovary syndrome (PCOS) affects up to 10-12 percent of women of reproductive age. Dr. Joshua Hurwitz, a fertility specialist at Illume Fertility clears up misconceptions about the condition.

If you are diagnosed with PCOS, one of the most important things you can do is educate and empower yourself with evidence-based information so you can live a healthy life.

Whether you have been recently diagnosed with PCOS, lived with it for years, or wish you had learned about it years ago, separating myth from fact is essential to your well-being and managing this complex condition.

Here are six of the most common misconceptions about PCOS:

Myth #1: You Can’t Get Pregnant If You Have PCOS

Contrary to popular belief, this is (fortunately) not true for people with PCOS. While PCOS is one of the most common causes of sub-fertility, it is generally due to ovulation dysfunction that can be easily fixed in most people with PCOS, rather than an intractable, advanced fertility problem that does not respond to treatment.

Many people with PCOS are able to conceive on their own, and those who do not will typically respond quite well to entry-level fertility treatments like ovulation induction and intrauterine insemination (IUI). There are also advanced treatments like in vitro fertilization (IVF) if needed.

Rest assured: having PCOS doesn’t automatically mean you are infertile, and if you are having difficulty conceiving, many treatments (most of them non-invasive) are available to help those who need a little help to grow their family.

Myth #2: PCOS is Your Fault

This is another harmful (and inaccurate) assumption that can worsen the mental health of many people with PCOS. Those with the condition should never feel like they did something to cause their PCOS, or that it is their fault they are struggling with PCOS symptoms.

As researchers continue to study the genetic components of PCOS, the impact of family history and other factors becomes more apparent. About 10% of the general population will have PCOS, and if you have a primary relative with the condition, that number can be doubled. However, because it is such a complex syndrome with many contributing factors, it can be difficult to pinpoint the exact cause of PCOS. However, one thing holds true: you did not cause it, and shouldn’t blame yourself for having the condition.

Myth #3: Losing Weight Will Cure Your PCOS

One of the first pieces of advice most people with PCOS receive is to lose weight. While shedding pounds can alleviate certain symptoms (including reducing insulin resistance), weight loss is not a cure-all. PCOS is very sensitive to changes in body weight, both up and down.

Having PCOS can make losing weight more difficult by slowing down your metabolism, causing more intense cravings, and other challenging factors. Blanketed weight loss advice, especially when not tailored to the individual, can often do more harm than good. Extreme dieting and intensive exercise can actually be detrimental to your metabolism and raise levels of cortisol (the stress hormone), which makes losing weight even harder. A slow, maintained level of weight loss, such as 1-2 pounds per week, is both feasible and sustainable.

You should always talk to your doctor about the right path forward for you. If you don’t currently have a doctor helping you manage your PCOS, look for a board-certified reproductive endocrinologist who has special training and experience treating the condition.

Myth #4: All People With PCOS Are Overweight

Although the majority of people with PCOS are in the overweight category, a small but significant segment of patients (20%) actually have a body mass index (BMI) in the “normal” range. These cases are referred to as “lean PCOS,” and can actually be more difficult to diagnose.

Myth #5: PCOS is Reversible

Unfortunately, this myth is categorically untrue, despite some “PCOS experts” claiming otherwise. PCOS is managed over a lifetime, it is not cured. No magic supplement or diet will reverse your PCOS. That being said, symptoms can be reduced dramatically with proper treatment and lifestyle changes.

By understanding your risks, finding ways to manage your symptoms, and working with healthcare professionals who specialize in PCOS, you can live a healthy, happy life. Experts in PCOS nutrition recommend the following dietary changes:

Choose foods low in saturated fats
Pick lean meats or fish and low-fat dairy
Include high-fiber foods by eating fresh vegetables and fresh fruits
Choose heart-healthy fats, while limiting high-fat foods
Avoid processed carbohydrates and added sugars, limit sweets
Opt for complex carbohydrates/whole grains

Other lifestyle-related adjustments you should consider:

Add in 30-60 minutes of physical activity each day
Eliminate smoking and recreational drugs
Eat regular (and balanced) meals
Find tools or methods to manage your stress
Engage in good sleep hygiene to improve your quality of sleep

Myth #6: If You Have PCOS, You’ll Get Diabetes

While people with PCOS often struggle with insulin resistance, which can lead to pre-diabetes and diabetes, there are many things you can do to avoid this progression. Why is it so important to pay attention to your blood sugar? Researchers have found that people with elevated blood sugar and insulin resistance are at greater risk for fertility challenges. More specifically, poorly controlled hemoglobin A1c (blood sugar) levels are correlated with the following:

a longer time to achieve a pregnancy
a higher chance of miscarriage
an increased risk for birth defects in early pregnancy

With proper diet and exercise (and in some cases, medication), you can keep your blood sugar levels in a healthy range and work to avoid diabetes altogether.

There are many ways to manage PCOS symptoms, improve your chances of conceiving, reduce your risk of further related health issues, and lead a healthy, fulfilling life with PCOS.

Taking steps to reduce your stress levels, increase movement, improve your diet, and surround yourself with a good healthcare team will help you feel more confident that you are on the path to success!

Dr. Joshua Hurwitz is a fertility specialist at Illume Fertility who is board certified in both Obstetrics and Gynecology and Reproductive Endocrinology and Infertility.